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Shine a light nf walk logo.

We’re bringing NF out of the shadows and inspiring the community to come together to End NF.

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Shine a Light NF Walk

Shine a Light NF Walk is the signature fundraising event of the Children’s Tumor Foundation. Our goal is to spread awareness of neurofibromatosis and schwannomatosis - genetic conditions that collectively affect more than 4 million people worldwide - and raise critical funds to advance research and treatments. Held in communities across the US, Shine a Light NF Walks are family-friendly events where NF patients, families, and friends can connect with others on a similar journey. For more information, contact us at

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NF affects 1 in every 2,000 births

NF refers to genetic conditions that cause tumors to grow on nerves throughout the body. NF includes all forms of neurofibromatosis and schwannomatosis and affects about 4 million people worldwide. Anyone can be born with NF, and it affects everyone differently. There is no cure yet.


FDA-approved Drug for NF, and more on the horizon

Koselugo (selumetinib) is the first FDA-approved drug for NF. CTF-funded research paved the way to this drug approval, and we are working for more approved drugs for all types of NF!


the number of NF Clinical Trials in the past 10 years

There are currently 67 active clinical trials for NF – three times the number of trials than just ten years ago!


years of funding NF research

The Children’s Tumor Foundation was founded 45 years ago as the first grassroots organization to support patients with all types of NF.


have joined the NF Registry

The NF Registry is a secure website where people with NF can take an active role in the search for better treatments. Participating is easy and makes a difference!


patients each year visit the NF Clinic Network

The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating individuals with NF.

Learn More about


Neurofibromatosis type 1

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NF2-related schwannomatosis

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Why you should get involved

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When you participate in a Shine a Light Walk, you are funding vital NF research

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Our Shine A Light Walks inspire the community to come together

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We recognize your efforts through our Fundraising Incentive Program.

Featured Stories / Testimonials

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Stories of NF: Andrea M

When I was born, the doctors kept telling my mom that I had a clogged…
A woman stands by a wooden railing overlooking a coastal landscape with mountains and a sandy beach in the background. She is wearing a light coat and carrying a small bag.

Stories of NF: Rozalinda H

I was diagnosed with NF2-SWN nine months ago (21 years old) last summer, on July…
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Stories of NF: Shy

I was diagnosed (with NF1) at seven years old while undergoing an allergy test. I…

Other ways to support

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Volunteers are making a difference in the lives of those living with NF

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Learn about CTF's ongoing advocacy for NF funding and awareness

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Make a Donation

Donate today to make a difference in the lives of all those living with NF

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Raise Awareness

Spread NF Awareness year round and during NF Awareness Month

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