Skip to main content
Shine a light nf walk logo.

We’re bringing NF out of the shadows and inspiring the community to come together to End NF.

Find Event Near YouFind a participant

Presenting Sponsor:

Shine a Light NF Walk

Shine a Light NF Walk is the signature fundraising event of the Children’s Tumor Foundation. Our goal is to spread awareness of neurofibromatosis and schwannomatosis - genetic conditions that collectively affect more than 4 million people worldwide - and raise critical funds to advance research and treatments. Held in communities across the US, Shine a Light NF Walks are family-friendly events where NF patients, families, and friends can connect with others on a similar journey. For more information, contact us at

A large group of people posing for a photo.

NF affects 1 in every 2,000 births

NF refers to genetic disorders that cause tumors to grow on nerves throughout the body. NF includes all forms of neurofibromatosis and schwannomatosis and affects about 4 million people worldwide. Anyone can be born with NF, and it affects everyone differently. There is no cure yet.


FDA-approved Drug for NF, and more on the horizon

Koselugo (selumetinib) is the first FDA-approved drug for NF. CTF-funded research paved the way to this drug approval, and we are working for more approved drugs for all types of NF!


the number of NF Clinical Trials in the past 10 years

There are currently 67 active clinical trials for NF – three times the number of trials than just ten years ago!


years of funding NF research

The Children’s Tumor Foundation was founded 45 years ago as the first grassroots organization to support patients with all types of NF.


have joined the NF Registry

The NF Registry is a secure website where people with NF can take an active role in the search for better treatments. Participating is easy and makes a difference!


patients each year visit the NF Clinic Network

The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating individuals with NF.

Learn More about


Neurofibromatosis type 1

Learn More about


NF2-related schwannomatosis

Learn More about



Find an event

Interested in volunteering for an event near you?

No events in your area?

Fight NF Your Way

Create Your Event

Find a Participant/Team

Raised: $2,242
Raised: $2,242
Raised: $1,581
Raised: $777
Raised: $623
Raised: $518
Raised: $518
Raised: $485
Raised: $310
Raised: $259
Raised: $4,983
Raised: $2,541
Raised: $1,581
Raised: $829
Raised: $777
Raised: $665
Raised: $525
Raised: $485
Raised: $426
Raised: $273

Why you should get involved

A young boy holding a sign that says make nf visible.


When you participate in a Shine a Light Walk, you are funding vital NF research

A large group of people posing for a photo.


Our Shine A Light Walks inspire the community to come together

A man and a boy walking down a track wearing t - shirts that say end nff.


We recognize your efforts through our Fundraising Incentive Program.

Featured Stories / Testimonials

Woman smiling with her hand on her hip, standing in front of a digitally added autumnal forest backdrop.

Stories of NF: Blanchesca G

My mom has told me how I got NF and it was when I was…
Two people smiling for a selfie with a boat and overcast sky in the background.

Chiasm: A Published Essay by Heather Osterman-Davis

Heather Osterman-Davis is a published writer and an NF Mom. Her work has appeared in…
A smiling child in a green hoodie sitting on a dock by the water with autumn foliage in the background.

Stories of NF: Charlie H

Charlie was diagnosed at nine months old through genetic testing. At five weeks old he…

Other ways to support

A woman wearing glasses and a t - shirt sitting on a bench.


Volunteers are making a difference in the lives of those living with NF

A group of people in blue shirts posing for a picture.


Learn about CTF's ongoing advocacy for NF funding and awareness

A child wearing a blue shirt with the words end nf on it.

Make a Donation

Donate today to make a difference in the lives of all those living with NF

A group of people in blue t - shirts posing for a photo.

Raise Awareness

Spread NF Awareness year round and during NF Awareness Month

Connect with us