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Shine a light nf walk logo.

We’re bringing NF out of the shadows and inspiring the community to come together to End NF.

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Presenting Sponsor:

Shine a Light NF Walk

Shine a Light NF Walk is the signature fundraising event of the Children’s Tumor Foundation. Our goal is to spread awareness of neurofibromatosis and schwannomatosis - genetic conditions that collectively affect more than 4 million people worldwide - and raise critical funds to advance research and treatments. Held in communities across the US, Shine a Light NF Walks are family-friendly events where NF patients, families, and friends can connect with others on a similar journey. For more information, contact us at shinealightwalk@ctf.org

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NF affects 1 in every 2,000 births

NF refers to genetic disorders that cause tumors to grow on nerves throughout the body. NF includes all forms of neurofibromatosis and schwannomatosis and affects about 4 million people worldwide. Anyone can be born with NF, and it affects everyone differently. There is no cure yet.

1

FDA-approved Drug for NF, and more on the horizon

Koselugo (selumetinib) is the first FDA-approved drug for NF. CTF-funded research paved the way to this drug approval, and we are working for more approved drugs for all types of NF!

3X

the number of NF Clinical Trials in the past 10 years

There are currently 67 active clinical trials for NF – three times the number of trials than just ten years ago!

45

years of funding NF research

The Children’s Tumor Foundation was founded 45 years ago as the first grassroots organization to support patients with all types of NF.

11,000

have joined the NF Registry

The NF Registry is a secure website where people with NF can take an active role in the search for better treatments. Participating is easy and makes a difference!

20,000

patients each year visit the NF Clinic Network

The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating individuals with NF.

Learn More about

NF1

Neurofibromatosis type 1

Learn More about

NF2-SWN

NF2-related schwannomatosis

Learn More about

SWN

Schwannomatosis

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Raised: $2,242
897%
Raised: $2,242
897%
Raised: $1,581
32%
Raised: $777
311%
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6%
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207%
Raised: $518
207%
Raised: $485
194%
Raised: $310
124%
Raised: $259
104%
Raised: $4,983
100%
Raised: $2,541
102%
Raised: $1,581
32%
Raised: $829
6%
Raised: $777
8%
Raised: $665
66%
Raised: $525
21%
Raised: $485
10%
Raised: $426
4%
Raised: $273
5%

Why you should get involved

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Impact

When you participate in a Shine a Light Walk, you are funding vital NF research

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Community

Our Shine A Light Walks inspire the community to come together

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Incentive

We recognize your efforts through our Fundraising Incentive Program.

Featured Stories / Testimonials

Woman smiling with her hand on her hip, standing in front of a digitally added autumnal forest backdrop.
NF1

Stories of NF: Blanchesca G

My mom has told me how I got NF and it was when I was…
Two people smiling for a selfie with a boat and overcast sky in the background.
Awareness

Chiasm: A Published Essay by Heather Osterman-Davis

Heather Osterman-Davis is a published writer and an NF Mom. Her work has appeared in…
A smiling child in a green hoodie sitting on a dock by the water with autumn foliage in the background.
NF1

Stories of NF: Charlie H

Charlie was diagnosed at nine months old through genetic testing. At five weeks old he…

Other ways to support

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Volunteer

Volunteers are making a difference in the lives of those living with NF

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Advocate

Learn about CTF's ongoing advocacy for NF funding and awareness

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Make a Donation

Donate today to make a difference in the lives of all those living with NF

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Raise Awareness

Spread NF Awareness year round and during NF Awareness Month

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