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Emmie Character – Featured NF Hero for August 2016

By August 24, 2016February 5th, 2024Awareness, NF1, Story of NF

“Our family’s resident superhero is Emmie. We’ve given her the nickname ‘Super Ems’ as she fights neurofibromatosis type 1. Emmie was diagnosed with NF just a week shy of three months of age. At that time, the doctors told us that she has a plexiform neurofibroma on her neck as well as kyphosis (a forward rounding of the back). She’s fought through two surgeries, one of which placed her in a halo brace and had her in traction for six days. She’ll be fighting another battle this year as she undergoes spinal fusion surgery at the age of 21 months.

“Even though she is just under two years old, she has her own agenda for each and every day. She makes us laugh daily and usually giggles along with us. If you ask any of her seven brothers and sisters, they will be quick to tell you that Emmie is their favorite sibling. She loves them just as much as they love her, too.

“Animals are among Emmie’s favorite things, especially cats and dogs, and she loves chocolate, chicken nuggets, and going for walks with the family. Emmie has a smile that will melt the hardest heart and a fighting spirit that constantly amazes us. Go Super Ems go!”

Abbie Character, Emmie’s mama and sidekick