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Stories of NF: Austin R.

By May 24, 2017February 28th, 2024NF1, Story of NF

Austin was diagnosed with neurofibromatosis type 1 around 6 months old. He had cafe au lait spots and swelling on the right side of his face. Even though I have NF, we were told it was very unlikely that it would get passed down. He was getting an MRI and, by chance, the anesthesia department was having issues getting the breathing tube down. They called the doctor in charge in the oncology department, who, also by chance, was an NF specialist. That was how he was diagnosed.

Having NF is rough. It has limited the things Austin can do. With limited vision/hearing Austin cannot do all the things he wants to do. But he is a fighter and tries the best he can.

Austin is in the 8th grade. Video games are pretty much his life right now (that, and tormenting his younger sister.

We fight NF by keeping positive. Just realizing that, yes, his is bad, but there are kids who have it worse. Fighting NF has made Austin stronger by being able to stand up for himself. Having the confidence to at least try something, even if he knows he will fail.        -Patricia, Austin’s mom





Motto Don’t worry if you don’t succeed, it’s the trying that counts

Favorite food Big Macs and french fries

Superpower The power to heal everyone