Stories of NF: Layla C.

Dec 3, 2018, Posted in Community, NF1, NF Hero

We learned of Layla's NF1 diagnosis when she was only 1 week old.

Layla suffers from severe headaches; there are three growths in her brain stem and one on her spine. She also has restless leg syndrome and ADHD. She has had four eye surgeries since birth.

Layla is a fun loving 4 year old that loves to color, draw. She loves to feed her chickens and play bingo with her older siblings. What makes her happy is to spend ‘family time,’ as she calls it, and watch Disney movies with us.

Our Layla's strength is what has made us as a family stronger! She is a true fighter! Seeing her get up every day with that beautiful smile on her face even when she is not feeling well makes me continue keep going every day to find a cure for NF.

-Layla’s mom, Nancy

 

QUICK TAKES

Motto I got this!

Dream vacation Walt Disney World

Superpower To cure NF