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This is NF: Dan Price

By December 8, 2018December 8th, 2023This Is NF

NF is something I’ve lived with my whole life. While people may have teased or stared at me, it’s because they don’t know [about NF]. I wish I knew more about NF as a kid, so I could have educated people. Now, knowing there is a whole community of others out there, just like me, makes me want to share my story.

As much as I enjoyed summer as a child, I dreaded going to the beach, to the pool, playing “shirts” vs “skins,” I was so self-conscious about my body, mainly because I had a fairly large neurofibroma on my back. I would often wear shirts at the pool, in the ocean, or not take part in sporting events if I had to take off my shirt.

It was tough, kids didn’t understand it, hell I didn’t understand it fully. Though I went to doctors and knew what it was, it was hard to vocalize. Plus kids can be mean. Finally, after I had my neurofibroma removed, I felt comfortable in my body, maybe too comfortable. I wish I could be more positive, but it was tough.

Growing up, I had a lot of dreams, as most kids do. While my dreams of being a millionaire athlete and celebrity never came true, I still like to think younger me would be proud of where I am in life.

Dan Price, 34 years old, lives with neurofibromatosis type 1. He is a Creative Director and resides in New York, NY.

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