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Stories of NF: Michele H.

By November 8, 2016February 28th, 2024Story of NF, SWN

“I learned of my schwannomatosis diagnosis at the age of 32.

“I have more than 20 tumors and counting. I live in pain daily, but I do not allow this pain to stop me from moving forward. I do worry about the future knowing that I have a tumor on my liver that is growing and inoperable, but I will not let that stop me in helping raise awareness for NF.

“I am a wife, a mother and grandmother! I have the most amazing husband, family and friends who fight this fight with me every day! I am a fighter, I am courageous and I want to raise awareness for NF to find a cure!! My husband knew I had NF before he married me and has been on a journey of tests, radiation and surgeries and stands beside me every step of the way. My parents are my rock!! No matter how old I am I am still there little girl and they walk beside me and hold my hand!

“I love helping others and I run for those who have NF that can’t and I fight for those with NF that can’t! I want to be a positive role model and do all I can to fight for NF and help with finding a cure.”





Motto Your smile is your logo, your personality is your business card, how you leave others feeling after having an experience with you becomes your trademark!

Hobby Running

Superpower To remove sadness from Earth