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Stories of NF: Philip M.

By December 1, 2016February 28th, 2024NF1, Story of NF

“My name is Philip and I am 11.  Everyone calls me Little Philip because my dad is also Philip, but I think I’m getting a little old to be called Little Philip still.  I live in Vestavia Hills, Alabama, which is just a few miles away from downtown Birmingham where I see my doctors at UAB’s NF Clinic and Children’s of Alabama Hospital.  While I don’t like all the medical tests and blood work I have to do at the NIH every 4 months while enrolled in the MEK trial, I do enjoy looking for geocaches in Bethesda and Washington DC, trying new cupcakes at Georgetown cupcake, and visiting all the cool museums and monuments, especially the Spy Museum, because I really like reading and solving mysteries and challenges.” – Philip Moss, Jr.

“Little Philip continues to be enrolled in the AZD6244 MEK trial through the National Institutes of Health. This drug has been the answer to many prayers for us. At the one year mark since enrolling, Philip’s tumor is now 36% smaller. We rarely hear children ask Philip what is wrong with his neck anymore. The drug does make Philip fatigued and that can be difficult for an eleven-year-old boy with peers that are active in sports and the outdoors. He takes this in stride and continues to amaze us with his resiliency. He keeps us motivated to fight for a cure.” –Renie, Philip’s mom







Hobby Reading and building robotics

Favorite motto And I will give you treasures hidden in the darkness–secret riches. I will do this so you may know that I am the LORD, the God of Israel, the one who calls you by name. – Isaiah 45:3

Favorite Food Black beans, sausage and rice