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Stories of NF: Ruta

By September 11, 2018February 5th, 2024Story of NF

I was 17 years old when I began feeling pain in my leg. I was feeling so much pain that I had to take painkillers every day and get massages from my friend. After two years in pain, I reached out to my doctors and told them what was happening. They did an MRI and found a schwanomma in my back. Then I told them that I was not hearing well out of one ear, so they did one more MRI of my head. The diagnosis came fast: I had NF2.  It did not break me, but my family was devastated. I was the strong one, the one who always believed I will never lose anything. I did not want to let this disease change anything in my life, but now it has changed a lot.

Living with it has changed a lot in my life; I am deaf now, I am always tired and it does not help me to be positive all days. But it has taught me to be strong and to show others that life is beautiful and simple things can become big things.

I have a daughter who is now 5 years old and that is the best thing ever happened to me. This baby helped me to look at life with brighter eyes. I love how kids can change the world. NF made me stronger in many ways. I know who I am and I know how to fight.


No disease or kids

It comes, but later it goes away

Dream vacation
Around the world!