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Stories of NF: Sammy K.

By November 21, 2016February 28th, 2024NF1, Story of NF

“After noticing a growing number of cafe au lait spots, Sammy had a juvenile xanthogranuloma removed and tested and diagnosed with neurofibromatosis type 1 at one year old.

“Sammy struggles with development issues and has also been diagnosed with ADHD and pediatric developmental delays. He receives speech and physical therapy, behavioral therapy, and is followed by several specialists at Dayton Children’s Hospital. I can honestly say I have never felt a fear like the fear of having a child fighting something I cannot control. It can be so overwhelming at times but we take it day by day and stay positive because he is our little fighter!

“As a family we have faced NF with a brave face. We are active in the community and spreading awareness. Sammy loved being part of the NF Walk in Cincinnati this year and will definitely attend more.”





Hobby Playing Outside

Favorite Food Pizza

Additional Comments Sammy is a 5 year old boy who loves playing outside, working in the garage, and going to visit mammy and papaw.

– Rachel, Sammy’s mom