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Survey on Social Media and NF

You are invited to participate in a study of the effects of social media and support groups on feelings of isolation and self-esteem that may arise in individuals with neurofibromatosis (NF). Participation involves completing an online questionnaire. The questionnaire also assesses the feelings that individuals in the NF community have towards the representation of the NF in social media.

The questionnaire can be found here :

It is anonymous and will ask no specific identifying information. It is composed of 39 questions and will take approximately 30 minutes to complete. Please complete it in one sitting.

If there are any specific questions that you feel uncomfortable answering, you may skip these questions and continue to other questions. Please remember that at any time you can stop answering the questions, should you change your mind about participating in the study.

If you have any questions, contact

Rivka Glaser, Ph.D.
Stevenson University