Finding a Healthcare Professional

CTF understands how difficult it is to find healthcare professionals who have experience diagnosing and caring for NF patients. We continue to expand the NF Clinic Network and add to our list of other healthcare professionals. Below you can search for clinics that have been accepted into our NF Clinic Network, as well as other specialists throughout the country who are familiar with NF.

There are many things you may consider when choosing a doctor or clinic. These may include any of the following:

  • Location of clinic – ease and cost of travel to clinic
  • Specialists and types of care available
  • Types of patients seen – diagnosis (NF1, NF2 or schwannomatosis) and ages (adult vs. pediatric)
  • Physician experience and expertise in NF
  • Number of patients seen annually
  • Clinic involvement with CTF and the NF Clinic Network
  • Opportunity to participate in research
  • Insurance coverage and out of pocket costs, especially if doctor or institution is not within provider network
  • Available options of other clinics or institutions
  • Referral by the NF community – people living with NF in your area may recommend a certain doctor or clinic because of a good experience

If you need assistance finding appropriate NF care, please contact our Patient Support Coordinator, Kate Kelts, RN at kkelts@ctf.org.

About the NF Clinic Network (NFCN)

For more information or questions about the NFCN, contact:

HEATHER RADTKE, MS, CGC
NF Clinic and Symposium Coordinator
hradtke@ctf.org
646-738-8574

The Neurofibromatosis Clinic Network (NFCN) was established by the Children’s Tumor Foundation in 2007 to standardize and raise the level of neurofibromatosis clinical care nationally and integrate research into clinical care practices. The NFCN is the first nationwide network dedicated to improving clinical care and establishing best practices for treating those living with NF. The NF Clinic Network recognizes clinics that provide comprehensive medical care to individuals with NF, foster patient education, and encourage participation in clinical research trials and the NF registry.

There are over 50 NF Clinics in the NFCN that have demonstrated their ability to provide specialty care to NF patients and their families. Any NF clinic can apply to be a part of the clinic network. Applications are reviewed and accepted or declined by the CTF Clinical Care Advisory Board based on several factors including NF expertise, patient volume, multidisciplinary approach, research support and connections with CTF.

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Matching Healthcare Providers

Name Location NF Types Areas of Focus Annual Number of Patients

Albany Medical Center
NF Clinic Network Member
The Melodies Center

Albany, NY NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Psychosocial 92

Ann and Robert H. Lurie Children’s Hospital of Chicago
NF Clinic Network Member
Neurofibromatosis Clinic

Chicago, IL NF1 NF2 Cutaneous neurofibromas, Genetics, Plexiform Neurofibromas 271

Arkansas Children’s Hospital
NF Clinic Network Member
Neuroscience Center

Little Rock, AR NF1 NF2 Dermatology, Genetics, Plexiform Neurofibromas, Vasculopathies 138

Boston Children’s Hospital
NF Clinic Network Member
Multidisciplinary Neurofibromatosis Program

Boston, MA NF1 NF2 Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 615

Children's Hospital of Pittsburgh of UPMC
NF Clinic Network Member
Neurofibromatosis Clinic

Pittsburgh, PA NF1 NF2 Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 433

Children's Hospital of Wisconsin
NF Clinic Network Member
NF/RASopathy Center

Milwaukee, WI NF1 NF2 Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis 181

Children's Hospitals and Clinics of Minnesota
NF Clinic Network Member
Neurocutaneous Syndromes Clinic

Minneapolis, MN NF1 NF2 Cutaneous neurofibromas, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 170

Children’s Hospital Colorado
NF Clinic Network Member
Neurofibromatosis Program

Aurora, CO NF1 NF2 Cutaneous neurofibromas, Dystrophic scoliosis, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 206

Children’s Hospital Los Angeles
NF Clinic Network Member
Comprehensive Neurofibromatosis Clinic

Los Angeles, CA NF1 NF2 Schwannomatosis Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial 360

Children’s National Health System
NF Clinic Network Member
Jennifer and Daniel Gilbert NF Institute

Washington, DC NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 325

CHOC Children's Hospital
NF Clinic Network Member
CHOC Neurofibromatosis Clinic

Orange, CA NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 132

Cincinnati Children’s Hospital Medical Center
NF Clinic Network Member
The Cincinnati Neurofibromatosis Clinic

Cincinnati, OH NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 420

Cleveland Clinic Foundation
NF Clinic Network Member
Neurofibromatosis Center

Cleveland, OH NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Learning disabilities or developmental delays, Plexiform Neurofibromas, Psychosocial, Vasculopathies 125

Connecticut Children’s Medical Center
NF Clinic Network Member
Neurofibromatosis Clinic

Farmington, CT NF1 NF2 89

Duke University Medical Center
NF Clinic Network Member
Duke Comprehensive Neurofibromatosis Clinic

Durham, NC NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 211

Emory University/Children's Healthcare of Atlanta
NF Clinic Network Member
Neurofibromatosis Clinic

Atlanta, GA NF1 NF2 Schwannomatosis ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Vasculopathies 361

Florida Hospital for Children
NF Clinic Network Member
Neurofibromatosis Clinic

Orlando, FL NF1 NF2 Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 202

Golisano Children's Hospital at University of Rochester Medical Center
NF Clinic Network Member
Comprehensive Neurofibromatosis Clinic

Rochester, NY NF1 NF2 Genetics, Learning disabilities or developmental delays, Pain 158

Henry Ford Health System
NF Clinic Network Member
Multidisciplinary Neurofibromatosis Clinic

Detroit, MI NF1 NF2 Schwannomatosis Psychosocial 41

Johns Hopkins All Children’s Hospital
NF Clinic Network Member
Neurocutaneous Disorders Clinic

St. Petersburg, FL NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Genetics, Learning disabilities or developmental delays, Pain, Psychosocial 49

Johns Hopkins University
NF Clinic Network Member
Comprehensive Neurofibromatosis Center

Baltimore, MD NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 440

Louisiana State University and Children's Hospital of New Orleans
NF Clinic Network Member
Children's Hospital Neurofibromatosis Clinic

New Orleans, LA NF1 Genetics 90

Massachusetts General Hospital
NF Clinic Network Member
Neurofibromatosis Clinic

Boston, MA NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, ENT/vestibular schwannoma, Genetics, Pain, Plexiform Neurofibromas, Psychosocial, Vasculopathies 612

Mayo Clinic
NF Clinic Network Member
Department of Clinical Genomics

Rochester, MN NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial 283

Mayo Clinic Arizona
NF Clinic Network Member
Clinical Genomics

Phoenix, AZ NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, ENT/vestibular schwannoma, Genetics, Pain 108

Moffitt Cancer Center
NF Clinic Network Member
Moffitt Genetic Neuro-oncology Clinic

Tampa, FL NF1 NF2 Schwannomatosis Genetics 66

Montefiore Medical Center/Children’s Hospital at Montefiore
NF Clinic Network Member
The Neurofibromatosis Center at Montefiore

Bronx, NY NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas, Psychosocial 136

Nationwide Children's Hospital
NF Clinic Network Member
Neurofibromatosis Clinic

Columbus, OH NF1 NF2 Schwannomatosis Dermatology, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Psychosocial 99

Nemours/Alfred I. duPont Hospital for Children
NF Clinic Network Member
Nemours RASopathy & Neurofibromatosis Clinic

Wilmington, DE NF1 NF2 Schwannomatosis Dermatology, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 114

New York Presbyterian Morgan Stanley Children's Hospital Columbia University Medical Center
NF Clinic Network Member
Division of Clinical Genetics

New York, NY NF1 NF2 Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 106

Nicklaus Children’s Hospital
NF Clinic Network Member
Nicklaus Children’s Hospital Neurofibromatosis Center

Miami, FL NF1 NF2 Schwannomatosis Genetics 229

NYU Langone Medical Center
NF Clinic Network Member
The Comprehensive NF Center at NYU Langone

New York, NY NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial 778

Ohio State University
NF Clinic Network Member
Neurofibromatosis Clinic

Columbus, OH NF1 NF2 ENT/vestibular schwannoma 60

Rainbow Babies and Children’s Hospital
NF Clinic Network Member
Multidisciplinary Neurocutaneous Syndromes Clinic

Cleveland, OH NF1 NF2 Schwannomatosis ENT/vestibular schwannoma, Genetics 125

Riley Hospital for Children IU Health Physicians
NF Clinic Network Member
Neurofibromatosis Clinic

Indianapolis, IN NF1 NF2 Schwannomatosis Dermatology, ENT/vestibular schwannoma, Genetics, Pain, Plexiform Neurofibromas 282

Rutgers New Jersey Medical School
NF Clinic Network Member
The Neurofibromatosis Center of New Jersey

Newark, NJ NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial 95

Seattle Children’s Hospital
NF Clinic Network Member
Neurofibromatosis Clinic

Seattle, WA NF1 NF2 Genetics 147

SSM Health Cardinal Glennon Children’s Hospital
NF Clinic Network Member
Neurofibromatosis Clinic

St. Louis, MO NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 334

St. Joseph’s Regional Medical Center
NF Clinic Network Member
Neurofibromatosis Diagnostic and Treatment Center

Paterson, NJ NF1 Genetics, Learning disabilities or developmental delays, Psychosocial 71

Stanford/Lucile Packard Children's Hospital
NF Clinic Network Member
Stanford Children's Neurofibromatosis Clinic

Palo Alto, CA NF1 NF2 Schwannomatosis Dystrophic scoliosis, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas, Pseudarthrosis 562

Texas Children's Hospital/Baylor
NF Clinic Network Member
Neurofibromatosis Clinic

Houston, TX NF1 NF2 Cutaneous neurofibromas, Dermatology, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 163

The Children's Hospital of Philadelphia
NF Clinic Network Member
University of Pennsylvania Neurofibromatosis Program

Philadelphia, PA NF1 NF2 Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 547

University of Alabama at Birmingham
NF Clinic Network Member
UAB Neurofibromatosis Clinic

Birmingham, AL NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 411

University of California, Los Angeles - UCLA
NF Clinic Network Member
UCLA Multidisciplinary NF2 Clinic

Los Angeles, CA NF2 Schwannomatosis ENT/vestibular schwannoma, Genetics, Psychosocial 23

University of Chicago
NF Clinic Network Member
Neurofibromatosis Program

Chicago, IL NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dystrophic scoliosis, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 219

University of Iowa Hospitals and Clinics
NF Clinic Network Member
Neurofibromatosis Clinic

Iowa City, IA NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas, Psychosocial 215

University of Kentucky
NF Clinic Network Member
Kentucky Neuroscience Institute Neurofibromatosis Clinic

Lexington, KY NF1 NF2 Pain 107

University of Minnesota Masonic Children's Hospital
NF Clinic Network Member
Journey Clinic

Minneapolis, MN NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 370

University of North Carolina Hospitals
NF Clinic Network Member
UNC Hospitals Neurofibromatosis Clinic

Chapel Hill, NC NF1 NF2 Schwannomatosis Dystrophic scoliosis, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas 368

University of Oklahoma Health Sciences Center
NF Clinic Network Member
University of Oklahoma NF Clinic

Oklahoma City, OK NF1 NF2 Schwannomatosis Genetics 225

University of Utah
NF Clinic Network Member
Neurofibromatosis Clinic

Salt Lake City, UT NF1 NF2 Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial 358

University of Wisconsin/American Family Children's Hospital
NF Clinic Network Member
Comprehensive Pediatric Neurocutaneous Disorders Clinic

Madison, WI NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas 93

UT Southwestern/Children’s Health Dallas
NF Clinic Network Member
Neurofibromatosis Clinic

Dallas, TX NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, Genetics, Plexiform Neurofibromas, Pseudarthrosis 588

Vanderbilt University Medical Center/Vanderbilt-Ingram Cancer Center
NF Clinic Network Member
VICC Neurofibromatosis Clinic

Nashville, TN NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Vasculopathies 189

Washington University/St. Louis Children's Hospital
NF Clinic Network Member
Washington University NF Clinical Program

St. Louis, MO NF1 NF2 Schwannomatosis Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies 277