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While NF science and research remain at risk we continue to fight!

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NF affects 1 in every 2,000 births

What is NF? NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF includes neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly known as neurofibromatosis type 2, or NF2. NF affects 4 million people worldwide. Anyone can be born with NF, and it impacts everyone differently.

The Children's Tumor Foundation (CTF) is the Drug Discovery Engine for NF

Everything we do is to bring treatments to patients as we work toward a cure.

Read About CTF's Impact

For Families
Like Yours

Meet a courageous mom whose journey with her daughter’s NF diagnosis began with uncertainty—but led to hope through the Children’s Tumor Foundation (CTF). Kimberly Snipes shares how CTF became a lifeline, offering answers, support, and a community that understands. Watch her story, and discover how CTF can be a source of strength and guidance for you, too.

Learn More about

NF1

Neurofibromatosis type 1

Learn More about

NF2-SWN

NF2-related schwannomatosis

Learn More about

SWN

Schwannomatosis

Connecting With You

By connecting patients, doctors, scientists, and pharma, we drive treatments, advance care, and deliver results for millions affected by neurofibromatosis or schwannomatosis.

NF Patients

Find a Doctor

More than 20,000 patients a year visit our NF Clinic Network, which includes more than 70 clinics across North America.

Resources

We connect patients with the education and information they need through patient brochures and educational webinars.

NF Registry

Join the thousands who have enrolled in the NF Registry, a critical tool in matching NF patients to clinical trials.

NF Professionals

NF Research

CTF drives vital research, scientific collaborations, and partnerships that accelerate NF research and drug development.

Drug Discovery

Everything we do is to bring treatments to patients as we work toward a cure.

Pharma and Biotech Partners

Our ongoing partnerships with pharmaceutical and biotech companies catalyze treatments for NF.

NF Community

Shine a Light Walk

Shine a Light NF Walk program brings local families and friends together to raise funds, promote awareness, and build community.

NF Endurance

Professional and amateur athletes run, bike, and swim in endurance events to raise awareness and funds for NF research.

Events

CTF hosts events all over the country both in-person and virtual for patients, families, clinicians, specialists, and researchers.

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