Super Emerson (French translation) is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
 

Talking to Your Child About NF1 is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.

Talking to Your Child About NF1 (Spanish translation) is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.

Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate tumors and progressive hearing loss.

The Children’s Tumor Foundation has sponsored a number of helpful webinars and panels to help patients living with NF2-SWN understand the latest in communication technology and cope with hearing loss.