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What is a Clinical Trial

Description

A printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.

A printable resource for those in the NF community seeking...

What is a Clinical Trial (Spanish)

Description

A Spanish translation of our printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.

A Spanish translation of our printable resource for those in...

2021 NF1 Diagnostic Criteria Update

Description

A summary of the 2021 diagnostic criteria update for neurofibromatosis type 1 (NF1).

A summary of the 2021 diagnostic criteria update for neurofibromatosis...

2021 NF1 Diagnostic Criteria Update (Spanish)

Description

A Spanish summary of the 2021 diagnostic criteria update for neurofibromatosis type 1.

A Spanish summary of the 2021 diagnostic criteria update for...

2022 Diagnostic Criteria Update Summary

Description

A summary of the diagnostic criteria for all types of schwannomatosis, including NF2-related schwannomatosis. Prior to this 2022 update, these conditions were referred to as schwannomatosis and neurofibromatosis type 2.

A summary of the diagnostic criteria for all types of...

Archie Comics’ Sounds Like Music

Description

Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2.

Meet Grace, the first member of the Archie Comics universe...

Café Au Lait – Children’s Picture Book

Description

Available for purchase at the CTF Store, this 36-page picture book tells the story of Enzo and his story about café au lait spots.

Available for purchase at the CTF Store, this 36-page picture...

Finding a Healthcare Professional

Description

A checklist for individuals working to select an appropriate NF healthcare professional.

A checklist for individuals working to select an appropriate NF...

MEK Inhibitors Patient Information Sheet

Description

Information for NF patients about MEK inhibitor drugs.

Information for NF patients about MEK inhibitor drugs.

MEK Inhibitors Patient Information Sheet (Spanish)

Description

A Spanish translation of our information for NF patients about MEK inhibitor drugs.

A Spanish translation of our information for NF patients about...