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NF Forum: How to Advocate for your Child

By January 15, 2010December 4th, 2023Awareness, NF Summit

This is the first in a series of articles outlining the agenda for the 2nd Annual NF Forum in Las Vegas from April 9-11.  The NF Forum is a patient and family medical symposium designed to educate individuals (of all ages) and their families about the NF disorders, management options, clinical trials, insurance concerns, social challenges and many other expressions of NF1 and NF2.  We welcome your comments and suggestions.

How to be an advocate for your child: School Related Issues, will take place during the NF1 Specific Workshops section of the program (there will be concurrent NF2 Specific Workshops).  The presentation will be delivered by Dr. David Salsberg, a licensed clinical neuropsychologist and Clinical Instructor at The NYU School of Medicine. The presentation will highlight the main learning and attention issues associated with NF and related IEP/educational information.  Additionally there will be an information booth following the presentation where Dr. Salsberg will be available to discuss specific questions/concerns including:

·         Questions on Learning disabilities

·         Attention deficit disorder

·         Special Education

·         Advocating for services

·         Neuropsychological evaluations

·         Special Education Law

·         Psychological/emotional/behavioral issues

·         Sibling issues